Patient associations
Useful contacts in the local area
A.G.C.
Heart and Lung Transplant Patients' Association
(Association des Greffés du Coeur et des Poumons de la Région Rhône-Alpes)
HQ : Maison des sociétés
Square Grimma
69500 BRON
A.F.D.O.C.
French Heart Surgery Patients' Association
(Association Française Des Opérés du Coeur)
Palais de la mutualité
Place Antonin Jutard
69003 LYON
Tel: (+33)(0)4 72 60 84 48
La Maison du coeur
Dr Hayem
5, place Edgar Puinet
69006 LYON
Tel: (+33)(0)4 78 65 09 89
Email : ac-rhone.ffc@club-internet.fr
Multidisciplinary Marfan syndrome consultation :
Dr Sophie DUPUIS GIROD
Clinical Genetics Dept
HOPITAL LOUIS PRADEL
28 avenue Doyen Lépine - 69677 BRON Cedex
Tel: (+33)(0)4 27 85 65 25/24
Email : sophie.dupuis-girod@chu-lyon.fr
A.D.O.T.
Organ and Tissue Donation Association
(Association des Dons d'Organe et de Tissu)
President : M. CORNIGLION
63, bd des Belges
69006 LYON
Tel: (+33)(0)4 78 94 24 05
Other useful addresses
S.E.S.E.R.A.C.
Society for the Study and Care of Children with Acute Rheumatic Fever and Cardiopathy
(Société d'études et de soins pour les enfants atteints de rhumatisme articulaire aigu et de cardiopathies)
8, Rue Bellini - 75782 PARIS CEDEX 16
Tel: (+33)(0)1 47 04 20 37
The SESERAC organizes vacations for children and adolescents with cardiac problems and who cannot get away with their family or in a normal vacation group. The vacation site is in the Château de Candé-sur-Beuvron, in the Loire valley, during July and August. There is a qualified educational team and a specialized medical team. These vacations can be covered by French National Health Insurance, after prior confirmation.
FNAMOC
National Federation of Associations of Cardiovascular and Heart Surgery Patients
(Fédération nationale des associations de malades cardio-vasculaires et opérés du Coeur)
Centre Hospitalier Sainte Anne - 1, rue Cabanis - 75674 Paris Cedex 14
E-mail : siegenational.fnamoc@wanadoo.fr
ANCC
National Association of Congenital Cardiopathy Patients
(Association nationale des cardiaques congénitaux)
Château des côtes - 78350 Les Loges-en-Josas
Tel: (+33)(0)1 48 87 92 57 ou (+33)(0)1 30 43 09 74
E-mail : annie.bordeau@wanadoo.fr
E-mail : ancc@maxifer.univ-lyon1.fr
Delegate for the Doubs: Fabienne CHAUDOT
Tel: (+33)(0)3 81 50 74 77
"Heart and Health" clubs
(CLUBS "CŒUR ET SANTE")
Members of the French Cardiology Federation
HQ: Fédération Française de Cardiologie
50, rue du Rocher - 75008 PARIS.
Tel : (+33)(0)1 44 90 83 83
Fax : (+33)(0)1 43 87 98 12
Website: www.fedecardio.com
National President : Pr André Vacheron
APODEC
Cardiac Defibrillator Bearers' Association
ASSOCIATION DES PORTEURS DE DEFIBRILLATEURS CARDIAQUES
38, Rue de Tivoli - 21000 DIJON
Tél/fax : (+33)(0)3 80 30 37 86
Tél/fax : (+33)(0)4 78 47 25 75
Tél : (+33)(0)2 31 84 20 80
E-mail : APODEC@libertysurf.fr